Wednesday, June 23, 2010

Helmets and Hot Weather....Not a Good Combination!

Whew! It is HOT here in South Carolina!!!! And it doesn't look like we will be seeing any relief in the next few days! It has been crazy here in the Wilson house for the past two weeks! We have had alot of appointments and other things going on! I had to schedule a visit with Orthopedic Services yesterday for an adjustment on Adell's helmet. We were noticing some redness and "pulling" on the left side near her eye. After the adjustment she is now doing great! Adell is adjusting to wearing her helmet and does not seem to mind it at all! We are now wearing the helmet 23 hours a day. I think her favorite time of the day is bath time! She really loves that! We have to watch Adell's big sister Emily who is 2, because when Adell's helmet is off she is very curious about it! If you know what I mean! We had my parents down Sunday night for a special "Father's Day Dinner". My dad and my husband love motorcycles. Dad made the coment that Adell looked like she was "ready for a ride"!!! Everywhere we go strangers love the "bling" that we added to Adell's helmet. I'm very suprised that the stickers have lasted! We have a busy day on Friday! Adell has her 6 month check up and then after that we have a follow up appointment with Orthopedic Services. This is our off week for physical therapy with Elizabeth at Kidnetics. We have an appointment scheduled next week with her. I will post next week after our appointment with Elizabeth. I hope everyone has a great rest of the week and weekend! Try and stay COOL!

Tuesday, June 15, 2010

It hasn't been easy....

Since my last post on Friday alot has happened in our house!!! Adell has been doing good wearing her STAR band!!! On Friday she wore it for 1 hour, on Saturday for 2 hours, Sunday 4 hours, Monday 8 hours, and today is the DAY!!! She wears it 23 hours today!!!! We had to run some errands today and poor girl! It's so HOT here in SC.... High of 95 degrees today with a heat index of 104!!!! We limited our stops today! I was able to educate a lady in line today at Dollar General about plagiocephaly and Adell's helmet! I also gave alexandras phate website information and told her to check it out! Bryson and I "blinged" Adells band this morning with her name and cute flower stickers! I'm a little slow at posting pics on that.
On another note and completely off the subject of Adell and her band, my son Bryson is from my first marriage that did not work out. We were still friends and got along which was good. Bryson's dad passed away on Sunday evening from what they think was a massive heart attack. He was only 33 years old. Bryson is only 7 and does not quite understand the whole concept of it. Please keep us in your thoughts and prayers as we go thru this difficult time.

Friday, June 11, 2010

Our Journey Begins








My name is Morgan and my daughter Adell has been diagnosed with Torticollis and Plagiocephally. This is our story....I first noticed at @ 4-5 weeks old that Adell constantly turned her head to the right. I brought this to her peditrican's attention at her next appointment. The doctor advised me to change her position when I found her turning her head to the right. We tried several different things and it just did not work. Still concerned, I made another appointment with Adell's doctor and he recommended us seeing a physical therapist. Our physical therapist Elizabeth at "Kidnetics" is wonderful!!!!! We love HER! At Adell's first physical therapy appointment Elizabeth evaluated Adell and started some exercises with her. She also gave me a list of exercises for us to do at home. We do these 5 times a day! At first Adell did not like this AT ALL, but I did find that she does best while she is in the bathtub. After several months of therapy with Elizabeth she recomended that we go for an evaluation for a "Star Band" (helmet). After measurments and a scan of Adell's head by "Orthopedic Services" it was determined that she definitely needed a helmet. We were very discourged when we found out that our insurance would not provide coverage for the helmet. Thank goodness for "Alexandra's PHATE"!!!! Gary and Valerie are WONDERFUL!!!! With their help and Blake from Orthomerica (the makers of the helmet) we were able to recieve a helmet. We went today for the fitting and Adell did GREAT!!! We wore our helmet this afternoon for 1 hour and she even fell asleep with it on! Check back often and follow our progress!